I have had so much going on the last few weeks and haven't been able to post. I have been having a lot of issues and don't know what is going on. We bought a new house and just got moved this weekend. I saw my neurologist on Thursday. He did a spinal tap and blood work to check for MS. I don't know if that is what else I have going on but they keep telling me that certain things aren't due to the Chiari or any other issues. I have a gut feeling though that something isn't right. He told me that right now his goal is to improve my quality of life, seeing as I don't have much of one right now.
I finally got my appointments scheduled for the Mayo Clinic. They aren't until April but I can wait. I have to see a pain doctor, a neurologist, and a pain psychologist down there. It's a start. I know that all of the issues I have been facing, I have been experiencing depression again. Other than that, I just go to pain management this week. I hope they understand and listen when I tell them that what they are doing isn't working. I have 75 pages of reports to go over from the 2 hospital visits to see what some things are. Fun Fun! I guess now it's just a waiting game. Luckily, my husband has the next couple weeks off of work. We can try to get this house together and finish cleaning up the rest of our old house. Then, family time and enjoying our first home. :)