While trying to keep my mind off of all my health issues, I have been contemplating doing something to raise awareness and money to help with research. I think I would also like to find a way to raise money for those who need to surgery but can't afford it. If more and more people are getting diagnosed with this condition, why is no one doing anything to educate our doctors and others. It seems like every time I see a doctor, I have to not only explain the Chiari and Syringomyelia, but also what my surgery entailed. I am the patient, so yes I should know my issues but these doctors went to school for years and have no clue. It's like as soon as they graduated medical school, they don't want to learn anything else. It drives me insane.
I haven't figured out what I want to do yet. I am still working on it. But I need something to do to keep my mind off of all the bad and focus on something good. Not only our conditions are being affected, a lot of others are too. If we can't feel comfortable going to a doctor when you have a problem, it makes you feel like your back is against the wall. I'm getting to the point of giving up on doctor's for answers.
My husband has been spending a lot of time looking about specialists and information. We are seriously considering this route. I am very lucky in the sense that he is in the Army and I have great insurance that has covered everything. I am also lucky that I have a husband who is by my side every step of the way. All of the problems, a lot of men would've already ran. Every time something new happens or I am having my same issues but they are intensified, I dread having to go to any doctor. I seriously have to think about it for a long time because I know that they are just going to have the same tests done, given some medicine, and sent home.
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